Measuring the quality of outpatient oncology care using data from clinical cancer registries
Literature research on the topic of “risks in health services research” is not fruitful because the topic has obviously only rarely been addressed so far. In order to differentiate the risks of health services research from the risks of other forms of research, we assume - in addition to the definitions of health services research offered so far (1) - that the primary goals of research and care are fundamentally different. In a traditional research project, the primary goal is to gain knowledge, while in a care project the primary interest is to provide the best possible care without the aim of gaining new knowledge at the same time. When this concept of the primary goals of research and care is applied, health care research projects are characterized by the combination of both goals.
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First publication date: 27.02.2012
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Abstract: Messung der Qualität der ambulanten onkologischen Versorgung mit den Daten klinischer Krebsregister
The draft law on the early detection and registration of cancer law (KFRG) is a good and important step towards more transparency, quality measurement and assurance and can provide important information on some key aspects of the quality of care in Germany and show differences between regions. Insofar as the data collection of the cancer registries is based exclusively on the uniform oncological basic data set of the Association of German Tumor Centers (ADT) and the Society of Epidemiological Cancer Registries in Germany (GEKID) - as provided for in the current draft law (as of October 2012) - some aspects remain, among others that were classified as relevant for quality assurance by practicing hematologists and oncologists as well as representatives of patient and professional organizations were not taken into account. In order to ensure that “all elements of cancer treatment can be checked and assessed for their success” (see VIII. Sustainability in the justification on page 27 in the draft law), additional additional modules could be used in addition to the planned organ-specific ones, which have so far been included in the draft law The above-mentioned data set addresses rather neglected aspects of cancer care, e.g. the patient perspective or aspects of process quality, as exemplified in this article.
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- Issue: Issue 02/2013 Publication Date: 27.02.2012 All issues as PDF Subscribe to print magazine Order single issue Open Access

