>>Dr. Hans-Peter Schulz, Genzyme Germany, opened the press conference with a review of the company's history and introduced the problem of treating rare diseases: On the one hand, specialized medical centers are “very fit” in this area, and on the other However, there is a major deficiency in the page
Treatment of patients by resident doctors. Above all, the communication between the specialized and established practitioners still leaves something to be desired.
Dr. Bertold Schrank, Department of Neurology at the German Diagnostic Clinic Wiesbaden, using the example of Pompe disease. This disease occurs in its classic, severe childhood form most often in Taiwan, but in Europe it mostly begins in adolescence or adulthood. It also progresses more slowly and is initially expressed by symptoms that are underestimated by those affected and interpreted as a lack of fitness, such as shortness of breath

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